The family of four-year-old Bonnie Marsh, who died just three days after developing a mystery illness, are still searching for answers almost one year on.
Lauren Marsh said she and her husband, Liam, remained in the dark over their daughter's death and whether her life could have been saved by doctors at the Norfolk and Norwich University Hospital.
They are still waiting to be given an official death certificate and do not know when inquest proceedings may take place.
Professor Nancy Fontaine, chief nurse at the NNUH, where Bonnie died, said staff had conducted a "thorough review" and sent the results of their investigation to the family back in March.
Meanwhile, a spokesman for Norfolk Coroner's Service said its own investigation was ongoing.
Bonnie, who lived with her family in Dereham, died on December 18, 2021, having first been rushed to the NNUH two days before.
Initially, the youngster had exhibited cold symptoms, but her condition deteriorated as she began vomiting and falling unconscious.
Bonnie was seen at hospital on December 16, but staff decided she was well enough to be sent home.
However, the Grove House Infant School pupil continued vomiting and was taken back to hospital on the morning of Saturday, December 18.
Just a few hours later, Bonnie died after her heart stopped and could not be restarted.
Detailing the family's ordeal since her daughter's death, Mrs Marsh said: "It has been awful - and still, we have got nothing to show for it.
"To begin with there was lots of investigating from the hospital. The doctor from the Saturday when Bonnie passed away got involved. She put forward lots of possible conditions that she could have had, when we know she didn't have them.
"Before the funeral, Bonnie's body was frozen and we weren't even told. I don't know who authorised it or why it was done.
"I didn't find out her body had been frozen, or that she was even being released [from the hospital mortuary], until the funeral director told me. And then I obviously couldn't see her for a while."
She added: "Bonnie's post-mortem results went to Addenbrooke's [Hospital, in Cambridge] to a genetic specialist and to a hospital in Germany. The result of that was that she didn't have a metabolic condition.
"We were then advised to get a solicitor, as was the hospital.
"We then found out from the coroner that the doctor [at the NNUH] hadn't sent them [the coroner's service] the paperwork they should have. We had to send the paperwork to the coroner ourselves."
Due to the ongoing investigation, Mr and Mrs Marsh were given an interim death certificate for their daughter.
It gives her cause of death as an "inborn error of metabolism", but Mrs Marsh said this was contradicted by the tests carried out at Addenbrooke's.
In the meantime, they must wait to receive a date for inquest proceedings.
"All we've got is this interim death certificate with the wrong cause of death," added Mrs Marsh.
"I've had to go to a psychologist because of the way all this has affected me.
"At this moment in time, we are waiting to hear about an inquest. We can't process things and move forward because we don't know why she died.
"It just feels like my daughter's life has become about money, but that is not what I want. I want answers and I want justice.
"People like me have been quiet in the past, but I'm not going to do that anymore; not until I get some answers."
Prof Fontaine said the NNUH would happily speak to Mr and Mrs Marsh to discuss their concerns surrounding the care Bonnie was given.
She said: "Our deepest condolences are with Bonnie’s family and our thoughts are with them following their loss.
"A full and thorough review took place at the NNUH following Bonnie’s death and we met with the family as part of the investigation process.
"The full report into our investigation was sent to the family in March and we’d be happy to speak with them further if they have any additional questions or concerns."
The spokesman for Norfolk Coroner’s Service said officers were in contact with Bonnie's family with regard to the progress of its investigation.
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